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Rank: Newbie
Joined: 11/23/2011
Posts: 5
Points: 15
Location: California
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My son turned 3 in August. Since mid-October he has been attending a special needs preschool. He has a severe speech delay. The school says he shows a couple autistic traits. I've taken him to several doctors. I still don't have a diagnosis or a timeline of when he will talk. I'm a single mother, I work 2 jobs & take my son to his appointments. I wish I just had an answer! I want to hear his little voice. I hate being asked why he doesn't talk. He has had his hearing tested at Children's Hospital of Central California. There has been an addendum added to his IEP already because he has met 2 of his goals. He is a smart & bright child. He just doesn't speak. He every once in awhile will let out a no, mama, dada, hi, but it's something that is very random. I practice sounds with him & he will watch my mouth. I have noticed his sound making changing from syllables to babble now. Is this how speech evolves? Also he is an only child & normally around adults. I'm hoping with being in preschool the other children will have influence on him. His class has about 6 children, all Autistic. I keep in contact with his teacher. Last week I took him to Central Valley Regional Center, it's for developmental delays. He was evaluated for Autism & mental retardation. I have not received the results. The doctor did sat he had a severe speech delay, when he gets excited he does this hand shaking movement & strained smile, and she also said she noticed a funny thing he does with his toes. Any thoughts or suggestions of tools to help him, I am open to.
-My pregnancy was full term, no complications during my pregnancy.
-Delivery ended up being a c-section after being induced the previous morning & not dilating.
-He gets about 2 ear infections a winter. Had RSV his 1st winter.
-Has always been cared for in my home by family.
-Didn't walk until he was 15 months old.
-He is very affectionate. Will play with other children when they are around. Does not have to have things done the same way every time. Sleeps very well, through the night on a schedule. Is not afraid of strangers. Loves indoor & outdoor activities. Loves music, drawing, puzzles & several learning apps on his iPad. I let him watch Barney, Yo Gabba Gabba, his Signing Time videos & anything on Nick Jr.
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Rank: Newbie
Joined: 11/27/2011
Posts: 1
Points: 3
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desar
Our son is 36 months and he has speech delays
-at what age ur son is going to preschool?
- how long did he have speech therapy, OT and DI?
- what did they diagnose at central valley?
- what are the two goals in the IEP he has met?
- does he utter any words now?
my son is getting early intervention service,only speech therapy. The DI and OT are starting form 28th of this month.but we see no improvement in speech. they asked us to go to neuro dev ped, the school referal program has started but yet to meet the neuro dev ped. He utters few words and relates few things.He watches TV and books, he doesnot speak sentences, he uses sign language to ask his needs.he pulls my hand for anything he needs. things like cookie, milk etc. he's afraid of strangers and likes physical activity alot like running, jumping.
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Rank: Member
Joined: 10/30/2011
Posts: 14
Points: -55
Location: Manchester UK
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OMG!!! You have just described my youngest daughter at that age....
No one would give me a defo answer to whether she is autistic, they said severe speech and language / global development delay. I waited for her 2nd birthday (no words) - then 3 rd birthday (no words) and then her 4th birthday and guess what?? (no words...We live in the UK and the therapy is crap, speech & Language in particular, this is because our health service (The NHS )has been bled dry. My daughter was past from one specialist to another for over 2.5 yrs and as a health prof my self I was getting pretty peed off for lack of interest and the lack of knowledge these sooo called specialists were giving her.
It's a bloody disgrace how SEN kids are dealt with, it's like hey lets just brush them under the carpet, we have no idea what we are dealing with.????
Anyway, I decided I would take things into my own hands I researched for probably a year or so trying to answers and to try and understand what indeed I was dealing with. I got rid of the NHS idots that basically said she will never talk and get over it, have a nice day and all that!!! So I found a Dr in the states( Yep!! your country, who appears to be on the ball with Autism, development delay, ADHD, Speech & Language delay etc etc) I read all i could on this guy, I was not going to let anyone treat my girl, not after all we had been through the last few years..
For the last 3 months she has been one of his patients taking MB12 Shots and other supplements....we are delighted to say that after only this short period of time, she is finally saying da dah, mama and baba, previous to this she never uttered a word! Now with increased babbling, fantastic eye contact, increased social skills, concentration levels, energy levels, learning much more at school, sleeping all night, no more mood swings or tantrums, after only this short period of time she has become a smiling, happy and chirpy little girl.....
Why oh why did I not do this sooner??
So all I can say is check the Dr out, he is very well documented throughout the states and treating kids all over the world..
DR JAMES NEUBRANDER
NEW JERSEY
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Rank: Newbie
Joined: 11/23/2011
Posts: 5
Points: 15
Location: California
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chucklava wrote:desar
Our son is 36 months and he has speech delays
- at what age ur son is going to preschool? He just started in October, so 38 months old
- how long did he have speech therapy, OT and DI? He did 1 session of group speech therapy at Childrens Hospital. After the session they told me that they thought he was deaf. Next week went back for a hearing test & he passed with flying colors! I don't know what OT & DI stand for but he hasnt done any sort of therapy.
- what did they diagnose at central valley? CVRC has not contacted me with their results. Matter of fact it was 3 wks yesterday since his exam. I will call them today. The psychologist that evaluated him said she noticed lack of eye contact, odd movement of his hands & feet & of course the lack of speech.
- what are the two goals in the IEP he has met? 1 goal was matching at a rate of 75% or better. The other was identifying at least 15 items in a row.
- does he utter any words now? My mother who watches him after school til I get home from work said she swore she heard "grama" twice this week. Last week I heard ball. But it seems it has to be on his own terms. I can rarely ever get him to repeat a word like "mama" if I ask him to say mama.
my son is getting early intervention service,only speech therapy. The DI and OT are starting form 28th of this month.but we see no improvement in speech. they asked us to go to neuro dev ped, the school referal program has started but yet to meet the neuro dev ped. He utters few words and relates few things.He watches TV and books, he doesnot speak sentences, he uses sign language to ask his needs.he pulls my hand for anything he needs. things like cookie, milk etc. he's afraid of strangers and likes physical activity alot like running, jumping. At his school he is in a class with about 4 Autistic children. It's a special education school. He is not potty trained but this preschool will help with that when he's ready. My son also loves books & videos. Eric Carlisle books are great. He loves Brown Bear Brown Bear. Nick Jr, Barney, Yo Gabba Gabba & Baby Signing Time are things he watches. I taught him some sign language but he rarely uses it. He will grab my hand & take me to what he wants if it's something that he cant bring to me. He's not afraid of stranger & likes physical activity also like your son. I'm curious what the neuro dev ped does for your son. Let me know please if you make any progress.
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Rank: Newbie
Joined: 11/23/2011
Posts: 5
Points: 15
Location: California
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Hope:
Wow, you are dedicated! I'm glad to hear it's helping. But do you actually come to the US? Or is it something he does by internet/mail? I will definitely look him up on the internet. Thank you.
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Rank: Advanced Member
Joined: 1/22/2008
Posts: 779
Points: 2,073
Location: Colorado
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Hi stacdog 1, I am wondering if you and your son receive any individual sessions which focus specifically on his needs and which give you new or additional ideas to work on with him throughout the day. I am wondering if you are working on production of "functional words" such as more, out, eat, etc. Also, since your son does not use signs, has anyone shown you picture symbols which he might use to communicate with you? I am not familiar with any research which identifies speech-language benefits from MB12 or other supplements. Do check with your doctor and request him or her to study the literature regarding such treatments. Anecdotal evidence is not the same as statistical evidence from properly constructed studies. Mary Lou B. Johnson, M.S.,CCC-SLP
http://www.helpyourchildspeak.com
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Rank: Newbie
Joined: 11/23/2011
Posts: 5
Points: 15
Location: California
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Mary LouSLP,
Individual sessions, no. He has only attened 1 group speech theray session in which
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Rank: Newbie
Joined: 11/23/2011
Posts: 5
Points: 15
Location: California
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Mary LouSLP,
Individual, no. He attended the 1 group session that I explained above. In his IEP it is written in that if the teacher thinks he needs speech therapy they will do 20 minutes once a week. But that has not began. I'm hoping he qualifies for services through Central Valley Regional Center. There are not any speech therapist in our city. Fresno is where Children's Hospital is but it's 45 minutes away. I keep in contact with his teacher to see what I can do at home to reinforce what he is learning. He used the sign language at first but stopped.
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Rank: Advanced Member
Joined: 1/22/2008
Posts: 779
Points: 2,073
Location: Colorado
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Hi stacdog 1, I would encourage you to request that your son start to receive individual therapy focusing on speech sound production in words that are useful to his daily life. He is 3, so everyone needs to be working very hard at this point. I would also recommend that they try some picture exchange with him since he has not done much with sign language. And, they should provide you with suggestions for ways of talking with your son when you are with him that should help promote more verbal attempts. I provide such techniques to parents through my teaching since the way parents and others talk with children can make a big difference in how the children are able to respond and interact verbally. Mary Lou B. Johnson, M.S.,CCC-SLP
http://www.helpyourchildspeak.com
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Rank: Member
Joined: 10/30/2011
Posts: 14
Points: -55
Location: Manchester UK
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The problem most parents have is they go to the local GP/DR entrusting them to help you and your child out and as a parent you think your doc has all the answers...WRONG!...You ask him/her.( hey, dr have you any info on alternative treatment therapy/ideas regarding a childs poor neuro development, speech and language delayed issues etc etc??)....
They are thinking, doh! I don't no.... with pleasure they pass the parents from one dr to another, to another just like a merry go round - You SHOUT I wanna get off!!......At the end of the day the medics have not got a clue what is wrong with your child and better still to add insult to injury ,making it even more painful for parents, they still don't have any idea how to treat your child months and years down the road and precious time lost when your child could be making progress with the correct therapy....
The simple answer is they have no experience or skills to offer parents the solution to the problems they are facing, so it makes sense even to a simpleton for parents to educate and enpower themselves with the knowledge and uderstanding of condition/issues of their own child and along with this gain the help, support and information from the professionals that have indeed been studying this specialist field. I believe that in the states for example these experts are known as DAN DOCTORS who treat various kids with ASD, development delay, speech and language delay, ADHD and more ....
There is hope x
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Rank: Newbie
Joined: 1/4/2012
Posts: 1
Points: 3
Location: Texas
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stacdog_1 I know exactly how you feel, you are not alone. I have a 36-month old son who isn't talking at all and no one can give me any answers. He started receiving speech therapy through early childhood intervention here in Texas back in October, 2011. He just started a preschool program at the elementary school on January 2nd, where he will have speech therapy 3 - 5 times a week. He is there 5 days a week for 3 hours a day. I had his hearing tested and was told that everything is fine. I have some professionals saying he has an expressive and receptive speech delay (more expressive) and that possibly somewhere down the line he may be diagnosed as autistic or may have another disorder that will be easier to diagnose as he gets older. Then on the other hand some say he does not seem autistic at all. So I am confused and don't know what to think. I just want to do what is best for my son and get him the best help/therapy that he needs. He is a happy child who makes eye contact and is very loving, but does not seem to show much interest in other children or people besides mom, dad and his older brother. I just can't wait until the day when I hear his voice for the first time or hear him say mama, or I love you. He is very smart and I just want answers so I can make sure he has a great start at life. If anyone has any suggestions or ideas please let me know, as I am always open to other opinions and knowledge.
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Rank: Advanced Member
Joined: 1/22/2008
Posts: 779
Points: 2,073
Location: Colorado
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my3jas, Have you had your son evaluated by a developmental pediatrician or clinical psychologist who looks at the "total child" in terms of overall health, play skills, social-interactional behavior, cognitive skills, understanding and use of language and other communicative attempts? If not, you may want to schedule such an appointment to learn more about why your son is not talking and communicating. It is good that you had accessed the early intervention program and that your son is starting in a preschool program where he will receive speech-language therapy. In addition to his educational program, you may want to learn more about ways of talking that can promote better understanding and increase attempts to speak. I have written a lot on this forum about my Upside-Down Pyramid way of talking with young children. You may be able to find my prior articles by using the search tab above. If you want to delve into this area more (what you can do at home to help your son) you may be interested in my e-book. There is a link to it from the home page of this forum (blue book cover). My methods do not seem to come naturally to most people, but, once learned, they can become automatic and be blended very naturally into all daily interactions with a child to make language much more obvious to him and to promote spontaneous imitation. Best wishes for hearing your son's first words soon in this new year! Mary Lou Mary Lou B. Johnson, M.S.,CCC-SLP
http://www.helpyourchildspeak.com
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